HIMSS and AMDIS Offer Comments on PMI Draft Data Security Policy Principles and Framework

March 28, 2016

In a March 25th letter to White House Office of Science and Technology (OSTP) Policy Director, John Holdren, PhD, HIMSS and the Association of Medical Directors of Information Systems (AMDIS), offered comments in response to Precision Medicine Initiative (PMI): Draft Data Security Policy Principles and Framework.

HIMSS and AMDIS applauded the application of the National Institute of Standards and Technology (NIST) Cybersecurity Framework (NISTCSF) to the PMI Principles and Framework.  The letter noted that while many researchers have already been sharing PMI data by way of contractual agreements, the security standards, practices, and breach notification procedures, may vary from agreement to agreement. As a result, we support the use of the NISTCSF to help establish uniformity amongst PMI organizations with respect to use and disclosure of PMI data.

HIMSS and ADMIS are committed to being a resource to OSTP on the Precision Medicine Initiative to help with its mission to enable a new era of medicine through research, technology, and policies that empower patients, researchers, and providers to work together toward development of individualized care.

View Letter

Posted Under: Policy Center