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The Journey of Writing an HIE Case Study

Last year, I participated in the HIMSS HIE Case Studies Task Force. The goal I set out to accomplish was defining obstacles, as well as identifying potential solutions addressing patient and provider engagement strategies. Other members of the task force focused on public health initiatives or utilizing HIE data analytics for MACRA reporting.

I originally did not know much about HIEs, except that HIEs exchange personal health information in a HIPAA-compliant manner to other participating healthcare organizations. The amount of time needed by an HIE to integrate the data and complete a standard-compliant transfer of information was foreign to me.

The Process and Completing the Interview

Each member of the task force received an HIE to interview on their respective topics. This process was time consuming but worth the effort to learn and share about the initiatives taking place at these HIEs. For many of us, contacting an HIE and setting up an interview with the appropriate person was the first challenge. We then integrated the information we gathered from the interview into a case study template for publication.

I was extremely fortunate to interview Sue-Ann Villano, the senior director of client services & marketing & outreach at the NY Care Information Gateway (NYCIG). She has been instrumental in making this case study a success, and I am deeply honored to have had her as an interviewee.

Lessons Learned from the Case Study Process

Throughout this process, I noticed a common theme: HIEs have a broad reach and encompass so many stakeholders, which makes it challenging to directly contact different individuals who can speak about the value that public HIEs can provide. More resources are necessary to launch a marketing campaign that truly educates the people they touch.

Within NYCIG, I interviewed the regional health information organization (RHIO), also known as a public HIE, and learned that continuous turnover in senior leadership and front-desk staff at healthcare organizations is the biggest barrier to their success in patient/caregiver engagement. This turnover leads to disruptions in achieving the primary goals of the organization, and thus, fewer patients consenting to share their data via the HIE.

What I found most interesting was the “Break the Glass” process. This is at the core of the RHIO’s mission. This process occurs when a clinician queries the RHIO database to obtain personal health information of a patient who is unable to respond and utilize that data to save a patient’s life.

It was a pleasure working with such an insightful team, and I have gained a lot of knowledge throughout this process. I hope to be a part of a HIMSS task force or work group again next year and continue to grow my knowledge within the Interoperability & HIE content area.

 

Access all Case Studies and Learn More

All the case studies developed by the FY17 HIMSS HIE Case Studies Task Force can be accessed here.

Learn more about FY18 HIMSS Task Forces and Work Groups on Interoperability & HIE.