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The Grateful Patient: Experiencing Healthcare from Both Sides #IHeartHIT

#IHeartHIT

National Health IT Week (NHIT Week), October 8-12, is a nationwide awareness week focused on catalyzing actionable change within the U.S. health system through the application of information and technology. Virtually, in Washington DC and beyond, NHIT Week stakeholders collaborate towards actionable outcomes which demonstrate the power information and technology has to transform health in the U.S., and its wide-reaching global impact.

Pam Kaur

In the spirit of National Health IT Week, I share my story with you, not only so that you may understand my passion for this industry but to also serve as a reminder that your own commitments to changing the healthcare landscape are appreciated beyond words.

September 26, 2016, both marks the beginning of National Health IT week and my birthday. Bear with me! I’ll explain to you the significance of my photo as well as my birthdate. In November of this year I will be undergoing chemotherapy and a subsequent Hematopoietic Stem Cell Transplant (HSCT). During that time I will be shaving my head and so to minimize the shock of losing my hair, I decided to cut my locks a bit to get myself used to not having long hair. While today is my official birthday, November will represent my “rebirth.”

But here’s where my story began ...

In 2008, months before I turned 25, I secured a job with a local health IT vendor. Having never before worked in the industry, I was nervous and yet excited about this new opportunity. As cliché as it sounds, it seemed like this opportunity was meant to be.

You see, just a few months earlier I had been diagnosed with multiple sclerosis. Prior to my diagnosis, I had been misdiagnosed twice, I’d had my paper medical records compromised on more than one occasion, I’d undergone redundant tests time and time again, and I sounded like a broken record as I told my story over and over again to clinicians. I was frustrated. I was upset. And I was angry. I couldn’t understand why Hospital A wasn’t talking to Hospital B and communicating what tests I’d already had done, I couldn’t wrap my head around the rollercoaster ride I unwillingly seemed to have been put on, and I couldn’t scream loud enough that I am more than a patient number; I’m a human-being.

Just like the frustrated clinicians and staff who work tirelessly to deliver patient care I, too, felt defeated at having to navigate a fragmented healthcare system. But I decided to use my experiences as a patient to turn that job opportunity into a lifelong career, igniting an unyielding passion. I decided I wouldn’t sit idly by rather I, along with many of you, would make a sizable difference in our industry ... and we have!

That difference is evidenced in part by a visit to my primary care provider a couple of weeks ago in which I was able to update my information on a tablet with a friendly user interface or by the doctor that emailed me a secure link to access my health records, mitigating the need for phone calls and paper trails. As someone who now has trouble writing, I was elated at having been able to tap answers onto a screen! These may seem like small things but to a patient, they make a BIG difference.

I realize we still have a long way to go, but I’m pleased by the progress that’s been made through health information exchanges, seamless interoperability and great collaborations. So to you all, I want to say a big, hearty THANK YOU – not just as someone who works in this industry but as a grateful patient.

The views and opinions expressed in this blog or by commenters are those of the author and do not necessarily reflect the official policy or position of HIMSS or its affiliates.

National Health IT Week | October 8-12

Healthcare Transformation | Access to Care | Economic Opportunity | Healthy Communities

Share your story, provide insights and help develop healthcare policy during NHIT Week – focused on catalyzing actionable change within the U.S. health system through the effective use of health IT.

View this year’s calendar of events
Explore this guide on supporting #NHITWeek through social media
Submit an #IHeartHIT Story
Participate in the Virtual March
Explore 10 ways to celebrate in your hometown
See the 2018 NHIT Week partners list, and sign up today

Originally published September 25, 2016, updated September 26, 2018