Interoperability Standards Advisory: Helping People Have a Voice in Their Health Story

Want to know how to get involved in a process that converts patient stories into the power to influence policy and inspire innovation?

If you make health IT policy decisions or develop health IT technology for patients and consumers, you need to know what the ISA is and how it is evolving to help people have a voice in creating their health story.

The Role of the Interoperability Standards Advisory

The Interoperability Standards Advisory (ISA) is a public list of current and emerging recommended health IT standards and implementation specifications. It informs policy makers and guides technology implementers toward the use of standards that are critical to enabling interoperability across the health IT ecosystem.

Room for Consumers as New Stakeholders in the ISA

Recently, the ISA adopted a new approach to help focus industry efforts and encourage progress for information exchange. An ISA Task Force within the Federal Advisory Committees (FACA) has recommended a set of consumer access use cases with high value for care improvement and broad applicability for data interoperability. Thirteen new use cases have been put forth to drive the patient’s participation in the co-creation of their health story. These use cases highlight ways that patients may contribute information to their health records and/or engage with their providers in the coordination of their care.

To date, standards addressing patients and consumers have been a gap in the stakeholders represented in the ISA. By putting these patient scenarios in the context of use cases, we hope that ONC will be able to leverage these use cases to identify standards and implementation specifications to include in the ISA in the future, driving adoption and innovation around patient-generated health data within health IT systems.

Empowering Patients to Engage in their Care

Recently at 2017 Health Datapalooza, HHS Secretary Tom Price emphasized his belief that the healthcare industry is in need of new policies focused on “accessibility, affordability, quality and empowering patients. I am encouraged by the momentum and interest in how patients can help bring efficiencies to their care. I hope that this work will continue to move these important efforts forward.

Check out this recent Health Story Project roundtable to learn more about the ISA and the use cases selected to drive patient empowerment and encourage standards-based exchange of patient-generated health data.